Friday, October 24, 2008

Pieces of Me

I apologize for neglecting my dear blog friends lately. You all know about the ongoing chaos that brought me to where I am, and can probably guess how busy things are for me as a disabled single mom these days. Fortunately, I'm not alone in this; my folks have been awesome to step in and help when I'm incapacitated by the latest migraine or whatever.

Recent weeks have been full of trips to doctors and other specialists (courtesy of my dad, who is determined to get me cured somehow), so I've been pretty busy. Days like today, when I take "dizzy pills" and go in for medical procedures involving several needles, generally knock me down for the count. I am still loopy, but somehow I haven't got the message that I shouldn't try to work in this condition. (You would not believe the number of edits I've made in this post already. At least I still recognize errors when I see them.)

One of the docs I saw this week suspects I have fibromyalgia (I always wanted to be just like Jen!) and gave me some new meds to try. So I'm trying them. As invested as I am in this SS Disability case, I'd much rather have my health back. After all, like Count Rugen said, "If you haven't got your health, you haven't got anything." More fun and games to follow, I have no doubt.


Elle said...

As a fellow fibromyalgia sufferer I well know the problems you're overcoming health wise. Be prepared to give yourself time to recover; there is no cure all pill for this condition I'm afraid. Above all rest, rest, rest and learn to pace yourself. There is light at the end of the tunnel; it just takes some time to get there :)

Jen said...

You have no idea how many people say they want to be just like me! That's a complete lie, btw. You made me laugh, thanks!

I love, love, love, my rheumatologist. My life is pretty live-able because of her! I still have a lot of symptoms, but I can generally count on being able to do what I need to these days. That was a big change for me, and I don't think people who haven't been in that position really understand what it's like to wake up and wonder if you'll be able to manage loading the dishwasher if you get a shower first, etc.

Part of what's working for me is medications and also living changes I've made, and part is understanding my limitations. I read a great article that helped me understand living with fibro, even though it was written by a lady with lupus. You can read it here if you're interested The Spoon Theory

And elle is right, getting enough rest, and really listening to your body's cues will help. (Not that I'm doing all that great on that count, yikes!)

Sending gentle hugs, and keeping you in my thoughts.

Scone said...

THANK YOU Elle and Jen! It makes all the difference in the world to know that someone out there understands me and what I'm going through. I know my family tries, but sometimes I think they suspect me of goldbricking. ("Geez, is she lying down *again*?! What does she think I am, her personal maid and babysitter?" Not that anyone around here would actually say those things. Yeah.) It's always nice to be told you're not crazy-- in that way, at least.

The doc put me on Lyrica, which has made my life so much more interesting for the past week. Lots of loopy moments and running into walls. Compounded with the extra blood-pressure meds (to say nothing of the other 5 items in my medicine portfolio that "may cause drowsiness"), it's amazing I've been awake at all this week.